Heartache in the Heartland

Maternal Mortality and Limited Access to Doula Care

Kathryn M. L. Konrad, PhD, RNC-OB, FCCE

Assistant Professor, Fran and Earl Ziegler College of Nursing - University of Oklahoma Health Sciences Center

Jennifer L. Heck, PhD, RNC-NIC, CNE, PMH-C

Associate Professor, Fran and Earl Ziegler College of Nursing - University of Oklahoma Health Sciences Center

Abstract

Maternal mortality has become an increasingly serious concern in the United States. The considerable variation in rates among different racial and ethnic groups points toward deeper, systemic and sociocultural variables at play, adding to the complexity of a problem in desperate need of a solution.

Doulas can help. These underutilized birth workers have been proven to improve health outcomes for both mothers and babies, and a growing number of experts are calling for increased access to doula care. While this call has been partially answered in Oklahoma — most notably through the extension of the state's Medicaid program to include reimbursement for doula care — obstacles remain throughout the chain of care.

It's time to think outside the box to raise awareness, improve access, and break down the barriers to doula care in the heartland and beyond.

Over the last few decades, maternal mortality has become an increasingly serious concern in the United States. A leading indicator of a nation’s health, maternal mortality is defined as the “annual number of female deaths from any cause related to or aggravated by pregnancy or its management (excluding accidental or incidental causes) during pregnancy and childbirth or within 42 days of termination of pregnancy, irrespective of the duration and site of the pregnancy.”1World Health Organization, “Maternal Mortality Ratio (per 100,000 Live Births).”  In 2021, U.S. maternal mortality peaked at 32.9 deaths per 100,000 live births2Centers for Disease Control and Prevention, “Pregnancy Mortality Surveillance System.” which is far worse than other high-resource nations such as Australia (5.8 per 100,000 in 2021)3Australian Institute of Health and Welfare, “Maternal Deaths.” or Canada (11 per 100,000 in 2020).4Macrotrends, “Canada Maternal Mortality Rate 1960-2024.”  

Maternal mortality varies considerably when factors like race and ethnicity are considered. In December 2021, U.S. maternal mortality rates for Black and Indigenous women (the word “women” is used herein as a general term and may include those who do not self-identify as women or exclusively as women) were 69.9 and 118.7 deaths per 100,000 live births, respectively.5Centers for Disease Control and Prevention, “Provisional Maternal Mortality Rates.” In the heartland, we see similar disparities. In Oklahoma from 2018 to 2020, maternal mortality for Black women was 49.4 deaths per 100,000 live births and for Indigenous women it was 44.4.6Oklahoma State Department of Health, “Oklahoma Maternal Health Morbidity and Mortality Annual Report.” 

Doula care, or services provided by a doula, has been associated with improved maternal and infant/child health outcomes.7Sobczak et al., “The Effect of Doulas on Maternal and Birth Outcomes: A Scoping Review.” A doula is a “trained professional who provides continuous physical, emotional, and informational support to a client to help them achieve the healthiest, most satisfying experience possible.”8DONA International, “What is a Doula?” Different types of doulas provide different services (see table 1). Doula care has the potential to improve maternal mortality by decreasing the risk of both cesarean and instrumental birth,9American College of Obstetricians and Gynecologists, and Society for Maternal Fetal Medicine, “ACOG/SMFM Obstetric Care Consensus: Safe Prevention of the Primary Cesarean Delivery.” which are precursors to top causes of maternal mortality including hemorrhage, infection, and thrombotic emboli.10Centers for Disease Control and Prevention, “Pregnancy Mortality Surveillance System.” Mental health issues (i.e., substance use, suicide, homicide) contribute to maternal mortality, categorized as pregnancy-associated deaths.11Building U.S. Capacity to Review and Prevent Maternal Deaths, “Report from Nine Maternal Mortality Review Committees.”

 
Table 1
Type of Doula Services Provided
Birth Doula Support clients during pregnancy, birth, and the early postpartum period
Postpartum Doula Typically focus more on the weeks (or months) following birth
Full-Spectrum Doula Provide additional support surrounding miscarriage and abortion
Community-Based Doula Often serve clients in under-resourced communities and take on additional responsibilities with a focus on health equity and the social determinants of health
Source: Maternal Health Learning & Innovation Center, “Doula Care in the United States.”

Postpartum depression and other perinatal mood and anxiety disorders may indirectly drive maternal mortality through suicide and substance use,12Heck et al., “Maternal Mortality Among American Indian/Alaska Native Women: A Scoping Review.” highlighting the need for more accessible doula care for Oklahoma women.

This fall, the Centers for Medicaid and Medicare Services and Child Health Insurance Program approved the reimbursement for tribal traditional healing provided by Indian Health Service facilities in Arizona, California, New Mexico, and Oregon.13Centers for Medicare and Medicaid Services, “Biden-Harris Administration Takes Groundbreaking Action to Expand Health Care Access by Covering Traditional Health Care Practices.” Including doula care services and Indigenous doula care, this groundbreaking change will expand access to doula care to improve healthcare quality and outcomes for Indigenous women. Similar programs are needed in Oklahoma, where we have one of the highest populations of Indigenous people in the nation.14Sanchez-Rivera, et al., “Detailed Data for Hundreds of American Indian and Alaska Native Tribes.”

The U.S. Department of Health and Human Services and the Health Resources and Services Administration recognized the clear advantages of community-based doula services by providing 4.5 million dollars for hiring, training, certifying, and compensating community-based doulas in fifteen states, not including Oklahoma.15U. S. Department of Health and Human Services, “Health Resources and Services Administration Announces Availability of New Funding to Support Community-Based Doulas.” While these programs break down barriers to doula care in other states, there remain many barriers to accessing affordable doula care in Oklahoma.

A major barrier is cost. Though SoonerCare, Oklahoma’s Medicaid insurer, and TriCare, insurance for military families, reimburse doula care, most other insurers do not.16Oklahoma Healthcare Authority, “Doula Services.” While insurance reimbursement is helpful, doulas need specific skills to apply for reimbursement and deal with insurance bureaucracy. Many doulas run their own businesses and may not have this skill set, making reimbursement difficult. Additionally, the rate is often lower than what doulas receive through self-paying clients.17Roux, “Issue Brief, Expanding and Diversifying the Doula Workforce: Challenges and Opportunities of Increasing Insurance Coverage.”

In addition to reimbursement issues, other barriers to accessing doula care abound. Families are not always familiar with the doula role and the services provided and may not know how to access doula care. With many maternity care deserts located in the Midwest,18Knocke, et al., “Doula Care and Maternal Health: An Evidence Review.” many Oklahoma families lack access to maternity care19March of Dimes, “Maternity Care Desert.” which may include doula care. This lack of exposure to doula care, as well as a lack of awareness about doulas in general, contribute to inaccessible doula care for pregnant and/or parenting families.

Birth providers and hospital systems are often unfamiliar with the doula role.20Roux, “Issue Brief, Expanding and Diversifying the Doula Workforce: Challenges and Opportunities of Increasing Insurance Coverage.” Doulas are not typically hospital staff and may face barriers to the implementation of doula care in a system unfamiliar with their services. Nurses and other hospital staff may not be familiar with the doula role and may be resistant to doula care.21Darvish, et al., “What do Community Doulas Think About the Future of the Doula Workforce?” Sadly, many nurses and hospital staff may create a difficult working environment for doulas.22Kang, et al., “Characterizing the Utilization of Doula Support Services Among Birthing People of Color in the United States: A Scoping Review.”

Additionally, it is unknown how many doulas are currently working, how many doulas are needed, and the geographic distribution of doulas in Oklahoma. This lack of tracking doula-related data potentially creates another barrier to doula care through lack of availability and awareness. Comparatively, this barrier is a non-issue in many other states. Therefore, the Oklahoma doula workforce, and other healthcare-related workforces, should start gathering data.
Much work is needed to address maternal mortality in the heartland. Action is needed in the individual, community, system, and state levels. The health-related benefits of doula care can be seen on all levels and is one factor that can potentially improve maternal mortality. Innovative ways to raise awareness, improve access, and breakdown barriers to doula care are needed, and to do so, advocates in the heartland must take a multilayered approach. Table 2 outlines our recommendations. Using a multilayered approach will raise awareness, improve access, and breakdown barriers to doula care and ultimately improve maternal and infant/child health outcomes.

Table 2
Level Recommendation Benefit/Outcome
State Level Fund mileage for doula care to address doula shortages in rural areas Increase access to doula care in rural areas
Offer joint certification for community health workers/doula role Expands current community health worker role and allows for growth of the doula workforce
Provide doula care reimbursement for state workers as a maternity benefit Expand access to doula care
Doula workforce research (current number, geographic distribution, how many are needed) Expand doula workforce
Insurers Offer reimbursement for doula care Expand access to doula care
Offer training resources to doulas for billing Support doula business and current community
Offer billing assistance to doulas Support doula business and current community
Fund scholarships for doula training Expand doula workforce
Provide doula care reimbursement for employees as a maternity benefit Expand access to doula care
Hospitals/Hospital Systems Review internal policies and procedures to assure doulas are welcome Expand doula access, supports doula workforce
Fund scholarships for doula training Expand doula workforce
Host doula trainings and include women’s services staff Supports doula workforce
Host doula “meet and greets” with medical, nursing, and support staff with local doulas Supports doula workforce
Provide doula care reimbursement for employees as a maternity benefit Expand doula access
Community Agencies Include doulas on staff to work with pregnant families Expand doula access
Develop joint doula/community health worker role Expand doula access
Offer office space to local doulas to meet with clients Expand doula access
Host doula networking times for doulas to network and mentor one another Supports doula workforce
Host meet the doula times for families to meet local doulas Expand doula access
Partner with doula trainers to train local doulas Expand doula workforce
Fund scholarships for doula training Expand doula workforce
Birth Providers Provide information on doula care Expand doula access
Host doula trainings Expand doula access
Fund scholarships for doula trainings Expand doula workforce
Host doula “meet and greets” for families in your care Expand doula access
Nurses Include doulas in report/hand off Supports doula workforce; incorporates doula care
Participate in doula training Supports doula workforce
Attend local doula meet ups and network with local doulas Supports doula workforce
Assure agency policies and procedures are welcoming doulas Expand doula access; supports doula care
Encourage employers to provide reimbursement for doula care as a maternity benefit Expand doula access
Include doulas in continuing education and simulations Supports doula workforce
Doulas Work with local and state agencies to advocate for doula care Expand doula access
Obtain training on insurance reimbursement Supports doula workforce; Expand doula access
Work towards certification standards and accreditation Supports doula workforce
Develop doula teams or services to address on call issues Supports doula workforce
Sources: Darvis, et al., “What do Community Doulas Think About the Future of the Doula Workforce?”; DONA International, “What is a Doula?”; Kang, et al., “Characterizing the Utilization of Doula Support Services Among Birth People of Color in the United States: A Scoping Review”; Knocke, et al., “Doula Care and Maternal Health: An Evidence Review”; Oklahoma Healthcare Authority, “Doula Services”; Roux, “Expanding and Diversifying the Doula Workforce: Challenges and Opportunities of Increasing Insurance Coverage”; Sobczak et al., “The Effect of Doulas on Maternal and Birth Outcomes: A Scoping Review.”

About the authors

Picture of Kathryn M. L. Konrad, PhD, RNC-OB, FCCE*

Kathryn M. L. Konrad, PhD, RNC-OB, FCCE*

Assistant Professor, Fran and Earl Ziegler College of Nursing at the University of Oklahoma Health Sciences Center

Picture of Jennifer L. Heck, PhD, RNC-NIC, CNE, PMH-C

Jennifer L. Heck, PhD, RNC-NIC, CNE, PMH-C

Associate Professor, Fran and Earl Ziegler College of Nursing at the University of Oklahoma Health Sciences Center

Dr. Kathryn Konrad and Dr. Jennifer Heck are faculty with the University of Oklahoma Fran and Earl Ziegler College of Nursing. Dr. Konrad is an assistant professor and Dr. Heck is an associate professor in the Child and Family Health Sciences Department. Both are maternal newborn health nurses, advocates, and researchers.

*corresponding author

Bibliography

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World Health Organization. “Maternal Mortality Ratio (per 100,000 Live Births).” Last modified 2024, https://www.who.int/data/gho/indicator-metadata-registry/imr-details/26.

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